November 2021 | Resources for National Family Caregivers Month

November 16, 2021
hobbies and activities for seniors
 

Every November, we join millions of Americans and other organizations across the country to recognize National Family Caregivers Month. 

In the United States, family caregivers are the primary source of support for both older people, and people with disabilities. They play an integral role in keeping so much of our communities safe and healthy. However, this often happens with little or no support, and sometimes at the risk of their own health and time for self-care. In fact, long-term family caregiving can have a significant mental, emotional, physical, and even financial impact on caregivers.

Studies show that coordinated support for caregivers can reduce the stress, depression, and strain for caregivers, as well as make it possible for them to keep their loved ones out of costly institutional care facilities for longer.  This is why, not only this month, but every month, it is important to recognize, appreciate, and support family caregivers for the important work they do every day to keep so many in our communities safe and healthy.

Azalea is proud to provide services every day that make it easier for caregivers to support their loved ones at home, or in environments that allow for loved ones to retain more independence and quality of life.

In addition to the resources we’ve collected below, you may also check out recommended tips for caregivers here.

Caregiver Resources, Organizations, and Support

Whether or you are a caregiver yourself or would like to seek out advice or other resources for someone you know that dedicates time and support as a family caregiver, we encourage you to consult, support, and share these resources, recommended by the National Association for Caregivers.

National Family Caregiver Support Program The National Family Caregiver Support Program (NFCSP), established in 2000, provides grants to States and Territories, based on their share of the population aged 70 and over, to fund a range of supports that assist family and informal caregivers to care for their loved ones at home for as long as possible.

Eldercare Locator

The Eldercare Locator, a public service of the U.S. Administration on Aging, is the first step to finding resources for older adults in any U.S. community. Just one phone call or Website visit provides an instant connection to resources that enable older persons to live independently in their communities. The service links those who need assistance with state and local area agencies on aging and community-based organizations that serve older adults and their caregivers.

Family Caregiver Alliance

Established in 2001 as a program of Family Caregiver Alliance, the National Center on Caregiving (NCC) works to advance the development of high-quality, cost-effective policies and programs for caregivers in every state in the country. Uniting research, public policy, and services, the NCC serves as a central source of information on caregiving and long-term care issues for policymakers, service providers, media, funders, and family caregivers throughout the country.

Caregiver Action Network

Resources from the Caregiver Action Network, including a Peer Forum, a Story Sharing platform, the Family Caregiver Tool Box, and more.

Tips for Caregivers

FDA Office of Women’s Health understands caring for someone can be rewarding, but challenging. FDA’s Tips for Caregivers website provides tools to help caregivers manage the care of their loved ones. The website provides tips for caregivers of older adults, young children, teens, and people with special needs. The website also highlights 7 tips for all caregivers to know.

Next Step in Care

Next Step in Care provides easy-to-use guides to help family caregivers and health care providers work closely together to plan and implement safe and smooth transitions for chronically or seriously ill patients.

Financial Steps for Caregivers

This resource to help you identify financial decisions you may face as a caregiver. The decision to become a caregiver can affect both your short-term and long-term financial security, including your own retirement.

ACL Councils, Groups, and Projects

These Administration for Community Living programs, groups, and projects work to provide support and empowerment for caregivers of older adults and people with disabilities.

National Family Caregiver Support Program This program funds programming to help family and informal caregivers care for older adults in their homes for as long as possible.

Lifespan Respite Care Program This program works to improve respite services for caregivers of older adults and people with disabilities.

University Centers for Excellence in Developmental Disabilities (UCEDDs) – these centers offer a variety of resources for families and caregivers including guides, videos, webinars, and training.

RAISE Family Caregiving Advisory Council This group provides recommendations to the U.S. Secretary of Health and Human Services on effective models of family caregiving and support to family caregivers, and improvements for federal government programs.

Advisory Council to Support Grandparents Raising Grandchildren: This group works with the public to share best practices, resources, and other useful information for grandparents and other older relatives raising children.

National Rehabilitation Research and Training Center on Family Support This group works with the government, academia, and a community of family caregivers to apply state-of-the-art research and training toward services and support to persons with disabilities and the families who support them.

RESILIENCE Rehabilitation Research and Training Center This group works to improve the health and function of people with disabilities and their caregivers by adapting and scaling two award-winning, evidence-based programs for children and older adults with disabilities (Chicago Parent Program and CAPABLE).

Alzheimer’s & Dementia Caregiving

Alzheimer’s Association

The Alzheimer’s Association works on a global, national and local level to provide care and support for all those affected by Alzheimer’s and other dementias. They offer help through a professionally staffed 24/7 Helpline (1.800.272.3900), face-to-face support groups and educational sessions in communities nationwide, and comprehensive online resources and information through the Alzheimer’s and Dementia Caregiver Center.

Alzheimer’s Foundation of America

The Alzheimer’s Foundation of America offers a national, toll-free helpline (866-232-8484) staffed by licensed social workers, educational materials, a free quarterly magazine for caregivers, and “AFA Partners in Care” dementia care training for healthcare professionals.

The Association for Frontotemporal Degeneration (AFTD) 

AFTD promotes and funds research into finding the cause, therapies, and cures for frontotemporal degeneration. They also offer information, education, and support to persons diagnosed with an FTD disorder, and for their families and caregivers.

The Lewy Body Dementia Association (LBDA)

LBDA works to raise awareness of Lewy body dementias (LBD), promoting scientific advances, and supporting people with LBD, their families, and caregivers. LBD is a complex disease that can present a range of physical, cognitive, and behavioral symptoms. It dramatically affects an estimated 1.4 million individuals and their families in the United States.

National Institute on Aging: Alzheimer’s Disease Education and Referral Center

Resources from the National Institutes of Health on Alzheimer’s disease and other forms of dementia, including information on clinical trials and current advances in scientific research.

U.S. Department of Veterans Affairs: Dementia Care (including Alzheimer’s)

For those caring for a Veteran, resources on dementia care through the VA and information on new research on dementia in Veterans.

Cancer Caregiving

National Cancer Institute
Many cancer patients today receive part of their care at home. Family caregivers may be spouses, partners, children, relatives, or friends who help the patient with activities of daily living and health care needs at home. These resources are about adult family caregivers in cancer.

Cancer Experience Registry – Caregiver

The Cancer Experience Registry is an online community that allows people facing cancer to share their experiences, identify the issues that impact their lives, take surveys, access resources and learn from each other. It is free, confidential, and open to anyone who has been diagnosed with cancer or provides care to a cancer patient.

Cancer Support Community Helpline

Hotline: 1-888-793-9355 The Cancer Support Community Helpline provides emotional and educational services for all people affected by cancer and their family caregivers.

Cancer Support Community Affiliates & Support Groups for Caregivers 

The Cancer Support Community Affiliate Network consists of 44 licensed affiliates, 170 locations, and a growing number of healthcare partnerships.

American Cancer Society – Caregivers Page

A cancer diagnosis affects close friends and family too. Find out what to expect if you become a caregiver for a person with cancer, and get tips for making sure that you take care of yourself as well. Resources available include information and support on How to Care for Someone with Cancer, Taking Care of Yourself as a Caregiver, How to Be Supportive to Someone with Cancer, When Your Child has Cancer, and a list of American Cancer Society Support Services and Programs for families who are managing cancer.

Help for Cancer Caregivers 

A collaboration of Anthem, Inc., CancerCare, Caregiver Action Network, Indiana University, and Michigan State University, this website provides resources and news on caregiver caregiving.

Caregiving for Persons with Disabilities, Rare Disease

 

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